Because rare disease, impacts everyone.

Thanks to the support of our generous donors, we are proud to offer our new caregiver support app at no cost to individuals and families impacted by rare diseases.

Developed in partnership with Cix Health, the app enables whole-family participation in care coordination by centralizing healthcare information, appointment management, medication tracking for themselves or their loved ones through one collaborative, secure, and easy-to-use platform.

Apply Here

A short application process is required to ensure that each user gets the most personalized and relevant experience possible. It’s fast, straightforward, and focused on your needs.